She’s completely disrupted our lives with a 911 call and ambulance ride to the ER when she was just 1 week old, doctors appointments and hospital visits, tripping over oxygen tubes, dealing with medical supply companies, unexpected medical bills, carting around oxygen tanks, and having to work our lives around her health needs. But a simple smile from her or those big eyes looking up at you will melt your heart. She’s definitely worth all the trouble 😉
There are times when it all just overwhelms me when I have a moment to think about what our lives have been like these past 9 months since she was born. Every now and then the fear of what’s to come in our future starts to take hold of me. But most of the time I’m too busy to think about it.
Today was Breanna’s check up with the cardiologist. The hole in her heart is still there but her heart isn’t showing any signs of stress – which is a good thing. So, we wait again. She’ll go back in when she’s 3 years old to check it again and if it still hasn’t closed by the time she’s 5, there will be the possibility of heart surgery. But for now, there’s really nothing to worry about where her heart is concerned. We’ll just keep praying that the hole will close on its own.
Her oxygen problems are completely unrelated to the ASD (hole in her heart) and they are hoping she’ll grow out of that issue as well. Next month, she’ll do an overnight sleep study at the hospital to check her oxygen levels/breathing difficulties and see if we can give her a try without the oxygen again (last time didn’t go so well and she was back on it within 2 weeks).
A big thanks to all of our friends and family that are praying for Breanna and ask how she’s doing. We appreciate all the love and support. We took the oxygen tube out for some pictures the other day, so here’s what our girl really looks like under her lovely oxygen accessories!